Thank you for your July 27 story, "White House honours Genzyme."
Genzyme Canada makes fabrazyme for Fabry disease. I have Fabry disease, a rare genetic disorder as well as my daughter, grandson, and granddaughter.
I agree that Canada needs a national rare disease drug policy as does the United States and Europe.
I can't believe that we are still fighting for it. I am a member of the Fabry Organization and attended a conference in Halifax two years ago. The same question was being asked then, why does Canada not have a drug policy for rare diseases? What is taking so long for approval?
